Basically, the bile ducts within the liver become scarred over time leading to cirrhosis. Rob, was very sick with an autoimmune disorder called PSC (Primary Sclerosing Cholangitis) and needed a liver transplant. That is completely false! WITHOUT DONORS, NONE OF THIS WOULD EVEN BE POSSIBLE! - Our Background (edited since the inception of this petition): My husband, Capt. No one is coming down and "swooping your organs" or "not trying save you" in an accident if that were to happen. There are a lot of unfounded myths that need to be dispelled. **FYI - by agreeing to be an organ donor, the chances you actually will be one day are very slim.
We have a major shortage of viable donors. Are you an organ donor? Just look on your driver's license. We are fighting for all patients with my husband's rare disease whose scores do not reflect how sick they truly are. You want a patient to be as healthy as possible going into a major transplant surgery for the best outcomes, before they develop life-threatening complications. The longer the wait time, the greater the risk. We are one example of how the imperfect MELD score for determining who gets a liver or not is negatively affecting our waitlist time for a liver transplant. OUR VOICES MATTER! We are just one story. It is making a difference! UNOS has already said that they take Public Comment into consideration when making policy changes so. _ HERE IS THE ORIGINAL PETITION BELOW: CHANGING POLICY within UNOS (United Network of Organ Sharing) Adding Exception Points to MELD Scores for PSC and PBC Liver Transplant Wait List Patients: I know this is a lot of information to digest, but unless you fully understand these terms, you cannot appreciate the challenges we are facing. Now we must continue to engage in public comment with the United Network of Organ Sharing (UNOS).
My author website to read about and purchase Saved by a Stranger: Life-Changing Journeys of Transplant Patients is ***AS A RESULT OF THIS PETITION, UNOS ENACTED AN IMPORTANT POLICY THAT MAKES IT LESS RESTRICTIVE FOR PSC PATIENTS TO RECEIVE EXCEPTION POINTS.
0 kommentar(er)
